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Global Healthy Living Foundation Urges Insurance Companies to Pass Savings to Patients Following Repatha (evolocumab) Price Reduction

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Global Healthy Living Foundation Urges Insurance Companies to Pass Savings to Patients Following Repatha (evolocumab) Price Reduction

Oct 24//
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Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Global Healthy Living Foundation asserts that health insurance companies are obligated to pass cost savings to patients resulting from the just-announced price reduction for Repatha (evolocumab, Amgen). Repatha is a treatmentin the PCSK9 inhibitor class for familial hypercholesterolemia (FH), an inherited disorder that can lead to aggressive and premature cardiovascular disease, and […]

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“PAINSOMNIA” Described by CreakyJoints Patient Advocates at the 2018 American College of Rheumatology Annual Meeting

Oct 23//
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Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–As part of the first ever “Patient Perspectives Poster Program” at the 2018 ACR/ARHP Annual Meeting in Chicago, volunteer patient advocates sponsored by CreakyJoints® presented a poster discussing patients’ adaptations to better manage “Painsomnia,” or pain-related insomnia. The poster titled, “Using a Mobile App to Facilitate Patient-Doctor Discussions to Make Informed Decisions Regarding ‘Painsomnia’” […]

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New Tool Under Development May Help Arthritis Patients Better Assess Risks and Benefits of Treatment Choices, Study Shows

Oct 20//
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UPPER NYACK, N.Y.–(BUSINESS WIRE)–Study findings presented at the largest rheumatology meeting in the U.S. signal that people with arthritis may soon have information on overall outcome on a medication from a measure that combines the range of possible benefits and the full spectrum of potential side effects at the individual patient level. @CreakyJoints and Yale […]

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Global Healthy Living Foundation Launches Comprehensive Support Center to Navigate Health Insurance Decision-Making During Open-Enrollment

Aug 29//
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Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Today, Global Healthy Living Foundation announced the launch of A Patient’s Guide to Insurance Enrollmentto help people living with chronic disease understand and make decisions about their health insurance coverage options. “Patients shouldn’t need specialized education to understand insurance, but unfortunately, they do because of the complex structure of insurance policies,” said Seth […]

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CreakyJoints Presents Tumbler and Tipsy by Michael Kuluva Spring/Summer 2019 Collection at STYLE360 NYFW

Aug 27//
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Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–CreakyJoints® today announces it will present the Spring/Summer 2019 Tumbler and Tipsy® by Michael Kuluva collection at the STYLE360 New York Fashion Week. As a person living with rheumatoid arthritis (RA) and an active member of CreakyJoints, Michael inspires the arthritis community when he translates his experiences into innovative, bright, and arthritis-friendly […]

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CreakyJoints Data Demonstrates Barriers to Treatment in Rheumatoid Arthritis

Jun 13//
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Press Releases

FOR IMMEDIATE RELEASEMEDIA CONTACTJessica DaitchPhone: 917-816-6712Email: jdaitch@ghlf.org Poster to be Presented at the Annual European Congress of Rheumatology (EULAR 2018) UPPER NYACK, NY (June 13, 2018) – On June 14, CreakyJoints® will present a poster at the Annual European Congress of Rheumatology (EULAR 2018) meeting in Amsterdam, Netherlands. Two additional abstracts were accepted for publication. […]

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CreakyJoints Data Demonstrates Barriers to Treatment in Rheumatoid Arthritis

Jun 13//
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Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–On June 14, CreakyJoints® will present a poster at the Annual European Congress of Rheumatology (EULAR 2018) meeting in Amsterdam, Netherlands. Two additional abstracts were accepted for publication. #ArthritisPower data presented at #EULAR2018 suggests rheums and #RA patients may not be engaging on #treat2target goals #arthritis @CreakyJoints Tweet this Utilizing the ArthritisPower™ research registry, […]

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Global Healthy Living Foundation to Present at the VA Medical Device Registry Summit

Jun 04//
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Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Today, Global Healthy Living Foundation (GHLF) is participating in the VA Medical Device Registry Summit, hosted by the Department of Veteran Affairs (VA) in partnership with other federal agencies, and co-organized by GHLF, to announce the creation of a VA Medical Device Registry. Christine Stake, PhD, MA, a volunteer patient advocate for […]

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On Gout Awareness Day, CreakyJoints Publishes First Ever Gout Patient Guidelines

May 22//
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Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–On Gout Awareness Day, CreakyJoints® today announced the publication of “Raising the Voice of Patients: The Patient’s Guide to Treating and Managing Gout.” These patient guidelines are the first ever to be developed by patients and reviewed by rheumatologists, specifically for use by gout patients and their caregivers. According to a 2017 CreakyJoints […]

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PCORnet Autoimmune and Systemic Inflammatory Syndromes Collaborative Research Group (ASIS CRG) Awards Grants to Study Reproductive Issues in Women and IBD in Older Adults

May 16//
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Press Releases

CreakyJoints to Facilitate Grant Program UPPER NYACK, NY (May X, 2018) – CreakyJoints today announced that the PCORnet Autoimmune and Systemic Inflammatory Syndromes Collaborative Research Group (ASIS CRG) has selected three projects to each receive a $5,000 grant to assist research teams in developing research protocols within the National Patient-Centered Clinical Research Network (PCORnet), which […]

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