Global Healthy Living Foundation Urges Insurance Companies to Pass Savings to Patients Following Repatha (evolocumab) Price Reduction

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Global Healthy Living Foundation asserts that health insurance companies are obligated to pass cost savings to patients resulting from the just-announced price reduction for Repatha (evolocumab, Amgen). Repatha is a treatmentin the PCSK9 inhibitor class for familial hypercholesterolemia (FH), an inherited disorder that can lead to aggressive and premature cardiovascular disease, and […]

UPPER NYACK, N.Y.–(BUSINESS WIRE)–As part of the first ever “Patient Perspectives Poster Program” at the 2018 ACR/ARHP Annual Meeting in Chicago, volunteer patient advocates sponsored by CreakyJoints® presented a poster discussing patients’ adaptations to better manage “Painsomnia,” or pain-related insomnia. The poster titled, “Using a Mobile App to Facilitate Patient-Doctor Discussions to Make Informed Decisions Regarding ‘Painsomnia’” […]

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Study findings presented at the largest rheumatology meeting in the U.S. signal that people with arthritis may soon have information on overall outcome on a medication from a measure that combines the range of possible benefits and the full spectrum of potential side effects at the individual patient level. @CreakyJoints and Yale […]

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Today, Global Healthy Living Foundation announced the launch of A Patient’s Guide to Insurance Enrollmentto help people living with chronic disease understand and make decisions about their health insurance coverage options. “Patients shouldn’t need specialized education to understand insurance, but unfortunately, they do because of the complex structure of insurance policies,” said Seth […]

UPPER NYACK, N.Y.–(BUSINESS WIRE)–CreakyJoints® today announces it will present the Spring/Summer 2019 Tumbler and Tipsy® by Michael Kuluva collection at the STYLE360 New York Fashion Week. As a person living with rheumatoid arthritis (RA) and an active member of CreakyJoints, Michael inspires the arthritis community when he translates his experiences into innovative, bright, and arthritis-friendly […]

FOR IMMEDIATE RELEASEMEDIA CONTACTJessica DaitchPhone: 917-816-6712Email: jdaitch@ghlf.org Poster to be Presented at the Annual European Congress of Rheumatology (EULAR 2018) UPPER NYACK, NY (June 13, 2018) – On June 14, CreakyJoints® will present a poster at the Annual European Congress of Rheumatology (EULAR 2018) meeting in Amsterdam, Netherlands. Two additional abstracts were accepted for publication. […]

UPPER NYACK, N.Y.–(BUSINESS WIRE)–On June 14, CreakyJoints® will present a poster at the Annual European Congress of Rheumatology (EULAR 2018) meeting in Amsterdam, Netherlands. Two additional abstracts were accepted for publication. #ArthritisPower data presented at #EULAR2018 suggests rheums and #RA patients may not be engaging on #treat2target goals #arthritis @CreakyJoints Tweet this Utilizing the ArthritisPower™ research registry, […]

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Today, Global Healthy Living Foundation (GHLF) is participating in the VA Medical Device Registry Summit, hosted by the Department of Veteran Affairs (VA) in partnership with other federal agencies, and co-organized by GHLF, to announce the creation of a VA Medical Device Registry. Christine Stake, PhD, MA, a volunteer patient advocate for […]

UPPER NYACK, N.Y.–(BUSINESS WIRE)–On Gout Awareness Day, CreakyJoints® today announced the publication of “Raising the Voice of Patients: The Patient’s Guide to Treating and Managing Gout.” These patient guidelines are the first ever to be developed by patients and reviewed by rheumatologists, specifically for use by gout patients and their caregivers. According to a 2017 CreakyJoints […]

CreakyJoints to Facilitate Grant Program UPPER NYACK, NY (May X, 2018) – CreakyJoints today announced that the PCORnet Autoimmune and Systemic Inflammatory Syndromes Collaborative Research Group (ASIS CRG) has selected three projects to each receive a $5,000 grant to assist research teams in developing research protocols within the National Patient-Centered Clinical Research Network (PCORnet), which […]