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38 Patient Groups Speak Out Against Recent Ruling in Texas v. US

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38 Patient Groups Speak Out Against Recent Ruling in Texas v. US

Dec 19// Meningitis

Ruling invalidates critical health care protections for millions of people with pre-existing conditions December 17, 2018 Categories: Advocacy News Washington, D.C., December, 17 2018 — Following Friday’s ruling in the case of Texas v. United States, which found all of the Affordable Care Act to be unconstitutional, 38 patient groups issued the following statement: “Our organizations, which collectively represent […]

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Is It a Migraine or a Stroke? Getting It Wrong Happens in 18% of Cases, Says New Study

Dec 03// Migraine

It’s easy to mistake migraine with aura for stroke, especially when you don’t get migraine attacks regularly. When someone is having a stroke, time is of the essence. If it’s an ischemic stroke — the most common kind, which is caused by a clot blocking blood flow to the brain — you need a drug […]

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Who Really Needs to Take CGRP Medication to Prevent Migraine? What New Guidelines Say

Nov 28// Migraine

These new medications are pricey, and insurers aren’t eager to cover them. New guidelines on which migraine patients need CGRPs most could help with access. If you frequently suffer from debilitating migraine attacks, you may already have a prescription for more than one type of medication: a pain-relieving drug to be taken when the pain […]

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Global Healthy Living Foundation Launches Comprehensive Support Center to Navigate Health Insurance Decision-Making During Open-Enrollment

Oct 31// Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Global Healthy Living Foundation recently published A Patient’s Guide to Insurance Enrollmentto help people living with chronic disease understand and make decisions about their health insurance coverage options in time for the 2019 open enrollment season. “Patients shouldn’t need specialized education to understand insurance, but unfortunately, they do because of the complex structure […]

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Global Healthy Living Foundation Urges Insurance Companies to Pass Savings to Patients Following Repatha (evolocumab) Price Reduction

Oct 24// Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Global Healthy Living Foundation asserts that health insurance companies are obligated to pass cost savings to patients resulting from the just-announced price reduction for Repatha (evolocumab, Amgen). Repatha is a treatmentin the PCSK9 inhibitor class for familial hypercholesterolemia (FH), an inherited disorder that can lead to aggressive and premature cardiovascular disease, and […]

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“PAINSOMNIA” Described by CreakyJoints Patient Advocates at the 2018 American College of Rheumatology Annual Meeting

Oct 23// Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–As part of the first ever “Patient Perspectives Poster Program” at the 2018 ACR/ARHP Annual Meeting in Chicago, volunteer patient advocates sponsored by CreakyJoints® presented a poster discussing patients’ adaptations to better manage “Painsomnia,” or pain-related insomnia. The poster titled, “Using a Mobile App to Facilitate Patient-Doctor Discussions to Make Informed Decisions Regarding ‘Painsomnia’” […]

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New Tool Under Development May Help Arthritis Patients Better Assess Risks and Benefits of Treatment Choices, Study Shows

Oct 20// Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Study findings presented at the largest rheumatology meeting in the U.S. signal that people with arthritis may soon have information on overall outcome on a medication from a measure that combines the range of possible benefits and the full spectrum of potential side effects at the individual patient level. @CreakyJoints and Yale […]

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Global Healthy Living Foundation Launches Comprehensive Support Center to Navigate Health Insurance Decision-Making During Open-Enrollment

Aug 29// Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–Today, Global Healthy Living Foundation announced the launch of A Patient’s Guide to Insurance Enrollmentto help people living with chronic disease understand and make decisions about their health insurance coverage options. “Patients shouldn’t need specialized education to understand insurance, but unfortunately, they do because of the complex structure of insurance policies,” said Seth […]

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CreakyJoints Presents Tumbler and Tipsy by Michael Kuluva Spring/Summer 2019 Collection at STYLE360 NYFW

Aug 27// Press Releases

UPPER NYACK, N.Y.–(BUSINESS WIRE)–CreakyJoints® today announces it will present the Spring/Summer 2019 Tumbler and Tipsy® by Michael Kuluva collection at the STYLE360 New York Fashion Week. As a person living with rheumatoid arthritis (RA) and an active member of CreakyJoints, Michael inspires the arthritis community when he translates his experiences into innovative, bright, and arthritis-friendly […]

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Aimovig®: A Cautious New Hope

Aug 07/Jamie Sanders/ Migraine

By now, just about every migraine patient has heard about Aimovig® (erenumab), the first FDA approved treatment for the prevention of migraine in episodic and chronic patients. The news was announced on May 17, 2018 and I’m sure there was a resounding cheer from migraine patients all across the country. Aimovig® is a member of […]

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