On our radar
We are currently monitoring legislation and supporting patient access to care around the following chronic conditions:
Arthritis is inflammation of one or more of the joints. One of the most common causes of disability in the U.S., this disease can severely limit function and negatively impact quality of life
While commonly thought of as a really bad headache, migraine is in fact a chronic, debilitating, and often under reported neurological condition.
An inflammation of the membranes covering the brain and spinal cord. There are vaccines available to prevent most forms of meningitis.
Elevated cholesterol can cause build up in the arteries which can cause dire health consequences.
On our radar
We are actively educating legislators and regulators at the state and national level regarding the following access to care issues:
Research by patients, for patients. Powered by CreakyJoints. As an arthritis patient, you can make a difference in the fight against arthritis and related conditions with this free app. Here’s how:
Groups Disappointed that CMS Approved Partial Expansion in Utah (March 29, 2019) WASHINGTON, D.C. – A group of 13 patient and consumer groups issued the following statement regarding the Centers for Medicare and Medicaid Services (CMS)’s announcement of the approval of Utah’s 1115 waiver partially expanding its Medicaid program: “CMS’s decision to approve a partial […]⇀ READ MORE
Patient Groups Applaud Court Rulings on Medicaid Work Requirements and Association Health Plans Rulings Will Help Protect Health Care for Americans Nation Wide (March 28, 2019) – WASHINGTON, D.C. 20 national groups representing millions of people nationwide with preexisting conditions issued the following statement in response to this week’s federal court decisions on Medicaid work […]⇀ READ MORE
Ruling invalidates critical health care protections for millions of people with pre-existing conditions December 17, 2018 Categories: Advocacy News Washington, D.C., December, 17 2018 — Following Friday’s ruling in the case of Texas v. United States, which found all of the Affordable Care Act to be unconstitutional, 38 patient groups issued the following statement: “Our organizations, which collectively represent […]⇀ READ MORE
It’s easy to mistake migraine with aura for stroke, especially when you don’t get migraine attacks regularly. When someone is having a stroke, time is of the essence. If it’s an ischemic stroke — the most common kind, which is caused by a clot blocking blood flow to the brain — you need a drug […]⇀ READ MORE
These new medications are pricey, and insurers aren’t eager to cover them. New guidelines on which migraine patients need CGRPs most could help with access. If you frequently suffer from debilitating migraine attacks, you may already have a prescription for more than one type of medication: a pain-relieving drug to be taken when the pain […]⇀ READ MORE