The Global Healthy Living Foundation is a 501(c)(3) non-profit organization with the mission to improve the quality of life for people living with chronic illness. Learn more about us here. Below are our core Advocacies.
The 50-State Network™
- A grass roots advocacy organization working to share the patient perspective for State and Federal health policy and regulation.
CreakyJoints™
- The go-to source for more than 100,000 arthritis patients and their families seeking education, support, advocacy and patient-centered research.
Fail First Hurts™
- A grassroots effort bringing the Fail First message of poor outcomes, inefficiencies, and higher costs to patients, physicians, caregivers, and more.
Medical Conditions
On our radarWe are currently monitoring legislation and supporting patient access to care around the following chronic conditions:
Arthritis is inflammation of one or more of the joints. One of the most common causes of disability in the U.S., this disease can severely limit function and negatively impact quality of life
While commonly thought of as a really bad headache, migraine is in fact a chronic, debilitating, and often under reported neurological condition.
An inflammation of the membranes covering the brain and spinal cord. There are vaccines available to prevent most forms of meningitis.
Causes bone density to decrease, resulting in reduced strength and fragile bones.
Elevated cholesterol can cause build up in the arteries which can cause dire health consequences.
Trending topics
On our radarWe are actively educating legislators and regulators at the state and national level regarding the following access to care issues:
An organization with deep ties to insurance companies using their influence to limit access to life changing treatments.
Cut through the noise and learn about the status of health insurance in 2017.
Prescription medicines created from food-based, natural molecules.
Keep track of your symptoms and help advance research with ArthritisPower
Research by patients, for patients. Powered by CreakyJoints. As an arthritis patient, you can make a difference in the fight against arthritis and related conditions with this free app. Here’s how:
- Track your symptoms, treatments and other health data from your computer or smartphone.
- See how your symptoms are changing—or holding steady—over time. How are you responding to new medications or other changes in treatment?
- Share how you’ve been doing to help your care team and loved ones better understand your condition.
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GHLF NEWSVIEW ALL
Groups Disappointed that CMS Approved Partial Expansion in Utah (March 29, 2019) WASHINGTON, D.C. – A group of 13 patient and consumer groups issued the following statement regarding the Centers for Medicare and Medicaid Services (CMS)’s announcement of the approval of Utah’s 1115 waiver partially expanding its Medicaid program: “CMS’s decision to approve a partial […]
⇀ READ MORE Apr 01
Patient Groups Applaud Court Rulings on Medicaid Work Requirements and Association Health Plans Rulings Will Help Protect Health Care for Americans Nation Wide (March 28, 2019) – WASHINGTON, D.C. 20 national groups representing millions of people nationwide with preexisting conditions issued the following statement in response to this week’s federal court decisions on Medicaid work […]
⇀ READ MORERuling invalidates critical health care protections for millions of people with pre-existing conditions December 17, 2018 Categories: Advocacy News Washington, D.C., December, 17 2018 — Following Friday’s ruling in the case of Texas v. United States, which found all of the Affordable Care Act to be unconstitutional, 38 patient groups issued the following statement: “Our organizations, which collectively represent […]
⇀ READ MORE Dec 03
It’s easy to mistake migraine with aura for stroke, especially when you don’t get migraine attacks regularly. When someone is having a stroke, time is of the essence. If it’s an ischemic stroke — the most common kind, which is caused by a clot blocking blood flow to the brain — you need a drug […]
⇀ READ MORE Nov 28
These new medications are pricey, and insurers aren’t eager to cover them. New guidelines on which migraine patients need CGRPs most could help with access. If you frequently suffer from debilitating migraine attacks, you may already have a prescription for more than one type of medication: a pain-relieving drug to be taken when the pain […]
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The Data
FAIL FIRST HURTS
FAIL FIRST HURTS
Fail First policies, also known as Step Therapy, are insurance policies which require the cheapest drug to be prescribed to a patient first, rather than the medicine originally prescribed by the doctor. LEARN MORE
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SOCIAL MEDIA
SOCIAL MEDIA