• Patient Perspectives on Medication Switching
    The Global Healthy Living Foundation (GHLF),  released the findings of a national survey of stabilized autoimmune patients that explored their perspectives on switching prescribed biological medicines.

  • Letter to FDA on naming


    The clock starts ticking as soon as a patient experiences symptoms of an adverse reaction. When the worst happens, we want our healthcare team to have the maximum information available to them in order to find the cause quickly and accurately.

  • What is Arthritis Power

    Arthritis Power is a new initiative by and for people living with arthritis. It puts YOU at the center of research in the fight against arthritis.

  • Active Advocacy

    Speak up for the healthy lifestyle you deserve when you engage with Seth’s 50-State Network.


    Congressional Arthritis Caucus letter to Express Scripts

    The Congressional Arthritis Caucus puts patients first. We strongly support the efforts of the caucus and applaud the leadership of Congressman David McKinley and Congresswoman Anna G. Eshoo.

  • Keep Facebook Free For Non-Profits


    Facebook recently changed its algorithm, which severely limits what people see in their newsfeed from pages they “like” – to as few as 1% of that page’s followers. This hurts non-profits that provide information, support and inspiration to people who want and need it. The only option is for non-profits to pay to promote posts, which is prohibitive. Thousands of non-profits, without much money, had dramatically improved their reach into worldwide communities, improving the environment, human rights, medical care, economic conditions and other critical issues that determine society’s quality-of-life.
    Facebook, the company that is on track to make more than $2 billion in profits in 2014, is strangling this humanitarian effort in order to make a few more bucks. Tell Facebook to change its algorithm for non-profit organizations so that everyone can get the help they need.

  • Psoriasis, A Way Out

    RedPatch.org is the place to learn how others control their psoriasis and how you can too.

  • Don’t Fail First

    When the drug or device your healthcare provider prescribes is denied by your insurance company, go here and add your name to the growing list of people who are changing these practices.

  • A Community for Arthritis

    CreakyJoints, the most popular arthritis Facebook page on the planet, with hundreds of thousands of people just like you talking about life, politics, love and work with arthritis. www.CreakyJoints.org

Our Communities

  • CreakyJoints

    Our Facebook page is a place for people with arthritis to share strength and experience with tens of thousands of others. Facebook recognizes CreakyJoints as the most popular arthritis Facebook page on the planet. Our website, www.CreakyJoints.org has the top arthritis bloggers in the world, the world’s only advice column for people living with arthritis and their caregivers, and up-to-the-minute news and information about arthritis drugs, healthcare providers, research and study opportunities, politics, employment and social issues.
    Read more
  • CreakyBones

    With our Facebook page and website, CreakyBones.org is the smart place for people with osteoporosis to come to learn, grow and be healthy. News, information, politics, community and family are all part of the CreakyBones experience for people dealing with osteoporosis. This previously untreatable condition has drugs and exercises that can delay or stop the progression of this disease. CreakyBones stays on top of these developments so you have a single site to visit.
    Read more
  • RedPatch

    Psoriasis used to be the condition that kept people indoors, fully-dressed and feeling embarrassed. Today the world is open for many with Psoriasis because of revolutionary drugs that can put the disease into remission. Stay in touch with others, learn about their journey to wellness, understand the drugs that are available, learn how to talk with your healthcare provider about them, and enjoy the support that comes from thousands of others who share your condition. And do it with RedPatch.org.
    Read more
  • Reward Your RA Success

    Knowing how you’re doing is the most important part of living with Rheumatoid Arthritis. www.ScoreYourRA.org lets you keep track, tell your healthcare provider, earn points to help others and yourself and be part of a new biomarker generation that is staying ahead of this disease with a simple blood test that measures progress, helps identify flares before they happen, and helps you know that you’re not the only person who deals with this disease and wins.
    Read more

The Access-to-Care Issues Facing Us Today

When your healthcare provider prescribes a drug or a device, the decision comes from knowing you, your current health, your good and bad history with drugs and devices, and an understanding of your personal needs and life issues. All this thought and caring is disregarded when your health insurance company overrules this decision and forces you to take a drug that may or may not work, and is based on profit not health. When this happens to you – and it happens to more than 70 percent of patients according to a GHLF survey – let us and your elected representatives know about it though FailFirstHurts.org. GHLF has been successful in limiting these hurtful practices, and with your help, we will continue.
We cannot imagine an America without Medicare – the most efficient healthcare delivery system we have with 98-cents of every dollar going directly to patient services compared with only 80-cents from private-sector insurance companies. It is imperative that Medicare remains the predictable and dependable health care program for seniors that it has been since Democratic President Lyndon Johnson signed it into law in 1965, and Republican Presidents Richard Nixon and George W. Bush expanded it in 1969 and 2003. Some would cut Medicare benefits or do away with it altogether in favor of private insurance. Patient and physicians overwhelmingly support Medicare and you can, too through ProtectingMedicare.org
Biologic injections and infusions have changed the world for people with debilitating and deadly diseases such as Rheumatoid Arthritis, cancer, MS and diabetes. HealthyBiologics.org tracks the availability of biologics as well as an exciting new group of drugs called "biosimilars" which could make the miracle of biologics available to more people through reduced cost. Stay current with these important and powerful drugs as they help create new life for people with diseases that used to be a death or disability sentence. Learn about the potential impact that your state laws may have on your access to these and similar medicines, and share your story to help others understand just how important this issue is to our community.
Named after Seth Ginsberg, America’s patient advocate, this nationwide network makes it easy for you to stay informed on impending state and national legislation affecting your healthcare—and offers you the chance to roll up your sleeves and get involved, shape the laws, and make a difference.

Join and you’ll receive updates on legislation, and if there’s a pressing legislative issue where we need our voices heard, we’ll put the word out to the 50-State Network. We’ll connect you with other network members in your geographical region, and if you’re new to advocacy, we’ll show you how to speak with the media and contact your elected officials.

“When you find the time and will to advocate, you can keep your sanity, find your voice, and lose your fear.” ~ Seth Ginsberg, Global Healthy Living Foundation and CreakyJoints co-founder

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Meningitis On Campus

Meningitis is a quick killer that targets college students. A simple vaccination can prevent this deadly disease. Read more about how GHLF spokesperson Dr. Neal Raisman, PhD, a former college president who lost his son to Meningitis, is fighting to make the vaccine available. The problem right now is that a committee of the FDA has to release dosage guidelines before insurance companies will pay for it. Read More

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The Global Healthy Living Foundation wants to bring out the advocate in everyone living with a chronic condition. By mobilizing and activating patients and their families, within their local community, we are able to improve access to care at a national level. This is how we improve health outcomes. This is how we stay healthy.

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