Our Communities

  • CreakyJoints

    Our Facebook page is a place for people with arthritis to share strength and experience with tens of thousands of others. Facebook recognizes CreakyJoints as the most popular arthritis Facebook page on the planet. Our website, www.CreakyJoints.org has the top arthritis bloggers in the world, the world’s only advice column for people living with arthritis and their caregivers, and up-to-the-minute news and information about arthritis drugs, healthcare providers, research and study opportunities, politics, employment and social issues.
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  • CreakyBones

    With our Facebook page and website, CreakyBones.org is the smart place for people with osteoporosis to come to learn, grow and be healthy. News, information, politics, community and family are all part of the CreakyBones experience for people dealing with osteoporosis. This previously untreatable condition has drugs and exercises that can delay or stop the progression of this disease. CreakyBones stays on top of these developments so you have a single site to visit.
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  • RedPatch

    Psoriasis used to be the condition that kept people indoors, fully-dressed and feeling embarrassed. Today the world is open for many with Psoriasis because of revolutionary drugs that can put the disease into remission. Stay in touch with others, learn about their journey to wellness, understand the drugs that are available, learn how to talk with your healthcare provider about them, and enjoy the support that comes from thousands of others who share your condition. And do it with RedPatch.org.
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  • Reward Your RA Success

    Knowing how you’re doing is the most important part of living with Rheumatoid Arthritis. www.ScoreYourRA.org lets you keep track, tell your healthcare provider, earn points to help others and yourself and be part of a new biomarker generation that is staying ahead of this disease with a simple blood test that measures progress, helps identify flares before they happen, and helps you know that you’re not the only person who deals with this disease and wins.
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The Access-to-Care Issues Facing Us Today

When your healthcare provider prescribes a drug or a device, the decision comes from knowing you, your current health, your good and bad history with drugs and devices, and an understanding of your personal needs and life issues. All this thought and caring is disregarded when your health insurance company overrules this decision and forces you to take a drug that may or may not work, and is based on profit not health. When this happens to you – and it happens to more than 70 percent of patients according to a GHLF survey – let us and your elected representatives know about it though FailFirstHurts.org. GHLF has been successful in limiting these hurtful practices, and with your help, we will continue.
We cannot imagine an America without Medicare – the most efficient healthcare delivery system we have with 98-cents of every dollar going directly to patient services compared with only 80-cents from private-sector insurance companies. It is imperative that Medicare remains the predictable and dependable health care program for seniors that it has been since Democratic President Lyndon Johnson signed it into law in 1965, and Republican Presidents Richard Nixon and George W. Bush expanded it in 1969 and 2003. Some would cut Medicare benefits or do away with it altogether in favor of private insurance. Patient and physicians overwhelmingly support Medicare and you can, too through ProtectingMedicare.org
Biologic injections and infusions have changed the world for people with debilitating and deadly diseases such as Rheumatoid Arthritis, cancer, MS and diabetes. HealthyBiologics.org tracks the availability of biologics as well as an exciting new group of drugs called "biosimilars" which could make the miracle of biologics available to more people through reduced cost. Stay current with these important and powerful drugs as they help create new life for people with diseases that used to be a death or disability sentence. Learn about the potential impact that your state laws may have on your access to these and similar medicines, and share your story to help others understand just how important this issue is to our community.
Named after Seth Ginsberg, America’s patient advocate, this nationwide network makes it easy for you to stay informed on impending state and national legislation affecting your healthcare—and offers you the chance to roll up your sleeves and get involved, shape the laws, and make a difference.

Join and you’ll receive updates on legislation, and if there’s a pressing legislative issue where we need our voices heard, we’ll put the word out to the 50-State Network. We’ll connect you with other network members in your geographical region, and if you’re new to advocacy, we’ll show you how to speak with the media and contact your elected officials.

“When you find the time and will to advocate, you can keep your sanity, find your voice, and lose your fear.” ~ Seth Ginsberg, Global Healthy Living Foundation and CreakyJoints co-founder

Twitter Feed

Happy 50th Birthday #Medicare & #Medicaid. Editorial:nyti.ms/1FXjvur via @nytimes. #healthcare
Fri Jul 3 09:27
RT @CreakyJoints: Patient centered outcomes research positively impacts generations to come. How has this been incorporated into the #ACA? …
Wed Jul 1 04:20
RT @CreakyJoints: President @BarackObama: How can we connect everyday Americans w/ patient centered research initiatives to better health o…
Wed Jul 1 03:45

Meningitis On Campus

Meningitis is a quick killer that targets college students. A simple vaccination can prevent this deadly disease. Read more about how GHLF spokesperson Dr. Neal Raisman, PhD, a former college president who lost his son to Meningitis, is fighting to make the vaccine available. The problem right now is that a committee of the FDA has to release dosage guidelines before insurance companies will pay for it. Read More

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The Global Healthy Living Foundation wants to bring out the advocate in everyone living with a chronic condition. By mobilizing and activating patients and their families, within their local community, we are able to improve access to care at a national level. This is how we improve health outcomes. This is how we stay healthy.

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