Our Facebook page is a place for people with arthritis to share strength and experience with tens of thousands of others. Facebook recognizes CreakyJoints as the most popular arthritis Facebook page on the planet. Our website, www.CreakyJoints.org has the top arthritis bloggers in the world, the world’s only advice column for people living with arthritis and their caregivers, and up-to-the-minute news and information about arthritis drugs, healthcare providers, research and study opportunities, politics, employment and social issues.Read more
With our Facebook page and website, CreakyBones.org is the smart place for people with osteoporosis to come to learn, grow and be healthy. News, information, politics, community and family are all part of the CreakyBones experience for people dealing with osteoporosis. This previously untreatable condition has drugs and exercises that can delay or stop the progression of this disease. CreakyBones stays on top of these developments so you have a single site to visit.Read more
Psoriasis used to be the condition that kept people indoors, fully-dressed and feeling embarrassed. Today the world is open for many with Psoriasis because of revolutionary drugs that can put the disease into remission. Stay in touch with others, learn about their journey to wellness, understand the drugs that are available, learn how to talk with your healthcare provider about them, and enjoy the support that comes from thousands of others who share your condition. And do it with RedPatch.org.Read more
Knowing how you’re doing is the most important part of living with Rheumatoid Arthritis. www.ScoreYourRA.org lets you keep track, tell your healthcare provider, earn points to help others and yourself and be part of a new biomarker generation that is staying ahead of this disease with a simple blood test that measures progress, helps identify flares before they happen, and helps you know that you’re not the only person who deals with this disease and wins.Read more
The Access-to-Care Issues Facing Us Today
When your healthcare provider prescribes a drug or a device, the decision comes from knowing you, your current health, your good and bad history with drugs and devices, and an understanding of your personal needs and life issues. All this thought and caring is disregarded when your health insurance company overrules this decision and forces you to take a drug that may or may not work, and is based on profit not health. When this happens to you – and it happens to more than 70 percent of patients according to a GHLF survey – let us and your elected representatives know about it though FailFirstHurts.org. GHLF has been successful in limiting these hurtful practices, and with your help, we will continue.
We cannot imagine an America without Medicare – the most efficient healthcare delivery system we have with 98-cents of every dollar going directly to patient services compared with only 80-cents from private-sector insurance companies. It is imperative that Medicare remains the predictable and dependable health care program for seniors that it has been since Democratic President Lyndon Johnson signed it into law in 1965, and Republican Presidents Richard Nixon and George W. Bush expanded it in 1969 and 2003. Some would cut Medicare benefits or do away with it altogether in favor of private insurance. Patient and physicians overwhelmingly support Medicare and you can, too through ProtectingMedicare.org
Biologic injections and infusions have changed the world for people with debilitating and deadly diseases such as Rheumatoid Arthritis, cancer, MS and diabetes. HealthyBiologics.org tracks the availability of biologics as well as an exciting new group of drugs called "biosimilars" which could make the miracle of biologics available to more people through reduced cost. Stay current with these important and powerful drugs as they help create new life for people with diseases that used to be a death or disability sentence. Learn about the potential impact that your state laws may have on your access to these and similar medicines, and share your story to help others understand just how important this issue is to our community.
Thx for sharing your story @charlesornstein "Baby’s Drug Co-Pay Jumps, & a Health Reporter Is Stumped" via @UpshotNYT nyti.ms/VSCnLV
Fri Aug 29 09:44
Make a difference with us- you are the expert of your experience: ghlf.org/seths-50-state… … Your story & #Advocacy can & will change lives!
Wed Aug 27 02:34
RT @CreakyJoints: “to that piece in each of us that refuses to be silent.” ― #AudreLorde. Seth raising up our voices in DC. #rheum http://t…
Wed Aug 27 01:24
Health Reform Updates
Whether you supported the Affordable Care Act – Obama Care – or not, it has been upheld by the Supreme Court and is providing previously unattainable benefits to millions of Americans. ObamaCare implementation will continue as states create their own health insurance structure for their citizens. It is an exciting time for healthcare in America and the more you know, the more you will be able to take advantage of the benefits of ObamaCare. Join millions of people who are ready to take advantage of the biggest, most inclusive healthcare reform in the world.
The Global Healthy Living Foundation wants to bring out the advocate in everyone living with a chronic condition. By mobilizing and activating patients and their families, within their local community, we are able to improve access to care at a national level. This is how we improve health outcomes. This is how we stay healthy.